Chinese Journal of Evidence-Based Pediatrics ›› 2022, Vol. 17 ›› Issue (3): 179-194.DOI: 10.3969/j.issn.1673-5501.2022.03.004

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Topics of Clinical Practice Guideline for Children and Adolescents with cerebral palsy: Scoping review

SHI Wei1a, ZHANG Chongfan1b, HUANG Zhen2, XIAO Nong3, ZHU Dengna4, XU Kaishou5, WANG Sujuan1a, WANG Jun1a, LI Hui1a, YIN Huanhuan1a, XU Yetao1a, ZHAI Chun1a, XU Lei1a, SHEN Xiushu1a, WANG Huishan1b, LIN Weize6   

  1. 1 Children's Hospital of Fudan University, Shanghai 201102, China;a Rehabilitation Department,b GRADE Center of Fudan University;2 Peking University First Hospital, Beijing 100034, China;3 Children's Hospital of Chongqing Medical University, Chongqing 400015, China;4 The Third Affiliated Hospital of Zhengzhou University, Zhengzhou 450007, China;5 Guangzhou women and children's Medical Center Rehabilitation Department, Guangzhou 510280, China;6 Children's Hospital of Fudan University at Xiamen, Xiamen 361006, China
  • Received:2022-07-24 Revised:2022-07-24 Online:2022-06-25 Published:2022-06-25
  • Contact: SHI Wei, email: shiweixiyi@163.com; ZHANG Chongfan, email: chongfan_zhang@fudan.edu.cn

Abstract: Background:Rehabilitation of children and adolescents with cerebral palsy(CP) needs highquality clinical practice guidelines to provide effective assessment and intervention to improve the health condition of children and adolescents with CP. Objective:To improve and perfect the topic structure of Clinical Practice Guidelines for Children and Adolescents with Cerebral Palsy (CANDLE). Design:A Scoping review Methods:We searched English literature in Google Scholar and Chinese literature in CNKI, WangFang and VIP from January 1, 2010 to May 2, 2022 to get literature about children and adolescents with CP including guidelines, expert consensus, systematic review, and scoping review. Grey literature was searched in Google and BAIDU. According to intelligent sorting of Google scholar, researchers preliminarily screened literature by reading titles and abstracts until consecutive 50 articles of failed to match the inclusion criteria. The included literature was rescreened by reading full texts. References of the included literature after the second screening were compared with the final list of the included studies to find differences. Those unduplicated ones were screened by reading titles and abstracts. Researchers extracted data about questions proposed by the scoping review to a selfmade Excel sheet. The sheet consists of items of the application condition of The International Classification of Functioning, Disability and Health for Children and Youth(ICFCY), function assessment, development, intervention, and functional influencing factor of children and adolescents with CP. The consistency of extracted data by 6 researchers was requested to be over 80%. Qualitative and quantitative methods were used to analyze data, and the core member of the CANDLE team answered the questions proposed by the scoping review. Main outcome measures:Questions proposed by the scoping review. Results:A total of 372 articles were enrolled in this scoping review. There has been a gradual increase in the number of guidelines, expert consensus, systematic reviews and scoping reviews in the past years. We got 7 English scoping reviews from 2010 to 2018, and 42 from 2018 to 2022. The majority of English literature focuses on intervention techniques, assessment techniques, and function status. Intervention techniques in Chinese literature accounted for 66.7%. There were 37 kinds of intervention techniques in 181 English articles. Four articles adopted ICFCY or ICF concept, and 78 articles partially used ICF concept in their structure. A total of 47 guidelines and expert consensus were enrolled. Among them, 9 expert consensus and 7 guidelines used function as a starting point. In 6 comprehensive guidelines, contents about function related to posture and motor were shown by muscular tension, mobility, hand activity, secondary musculoskeletal, daily living and leisure activities. There were 104 articles (31%) discussing the assessment method separately within 20 articles using COSMIN. Nine articles (3%) independently elaborated the effect of development characteristics on function. A total of 41 articles (12.1%) analyzed the interaction between function and background factors through the methods of correlation and influencing factors. Conclusion:The overall structure of CANDLE was initially formed through this scoping review. Eight domains were established with function as the core, each of which is shown through five elements (ICFCY as the framework, assessment, development, interaction, and intervention). Questions of interest within the scope are built on the elements.

Key words: Children, Adolescents, Cerebral palsy, ICF-CY, Function, Guideline, Expert consensus, Systematic review, Scoping review