健康和健康相关信息与《国际功能、残疾和健康分类（儿童青少年版)》 链接文献状况的范围综述

doi:10.3969/j.issn.1673-5501.2023.03.011

摘要/Abstract

摘要： 背景：将健康及其相关信息与《国际功能、残疾和健康分类》（ICF）联系起来，可用于描述和比较定量数据、定性研究结果和临床患者报告的结果，但涉及儿童和青少年的文献很少。目的：为《儿童和青少年脑性瘫痪临床实践指南》（CANDLEP）中儿童和青少年的健康及其相关信息在儿童青少年版ICF（ICF-cy）定位、链接和编码的分布状况提供支持与建议。设计：范围综述。方法：界定问题。检索英文（PubMed、Embase、Cochrane）和中文（CBM、CNKI和万方）数据库，以ICF、relate为关键词构建英文检索式，6名信息提取员的Fleiss kappa系数为0.80。主要结局指标：链接内容（文献特征）、链接质量控制、链接结果的呈示方式、脑瘫相关文献被链接ICF-cy编码的分布。结果：136篇中、英文文献纳入本文分析，以人群为研究对象的110篇文献中，31篇涉及脑瘫疾患；107篇采用了链接规则来提升质量控制，84篇采用了Cieza等提出的链接规则，其中73篇采用2005年版规则；93篇报道了有关链接信度。链接内容涉及到干预的各个阶段，评估、干预计划（目标与方法）、结局评价，71篇将评估工具与ICF-cy编码链接起来，链接成果主要指标为频度、广度以及密度；涉及脑瘫人群的链接编码主要集中于活动和参与。结论：将儿童和青少年健康及其相关信息与ICF-cy链接是推进ICF-cy临床实践的重要手段，在纳入文献涉及人群的相关研究中，脑瘫受到了最多的关注，为CANDLEP制定过程中ICF-cy要素的阐述提供了颇具价值的证据。

关键词: 儿童, 青少年, 脑性瘫痪, 国际功能、残疾和健康分类-儿童青少年, 关联, 范围综述

Abstract: Background：Matching health and health-related information with International Classification of Functioning, Disability and Health, known more commonly as ICF can be helpful to describe and compare quantitative data, qualitative research results and patient report results. However, there are few literature about children and adolescents in this field. Objective：To provide support and suggestions for Clinical Practice Guidelines for Children and Adolescents with Cerebral Palsy (CANDLEP) by identifying the location, link, code of health and health-related information about children and adolescents in ICF for children and youth (ICF-CY) . Design：Scoping review. Methods：Literature was searched by using the keywords of "ICF" and "relate" in English databases of PubMed, Embase(Ovid), Cochrane and Chinese databases of SinoMed, CNKI and WanFang. Literature features were extracted from those matching health and health-related information with ICF-CY by six people with Fleiss kappa of 0.80. Main outcome measures：The matched content, the quality control of matching, presentation of matched results, the ICF-CY code distribution of matched cerebral palsy-related literature. Results：A total of 136 articles were enrolled in this scoping review. Among 110 articles focusing on specific populations, 31 were related to cerebral palsy; 107 used matching rules to promote quality control; 84 adopted the matching rules proposed by Cieza et al., among which 73 used the 2005 edition; and 93 reported the matching reliability. The matched content involved evaluation, intervention objectives, intervention methods, and outcome assessment. In 71 articles evaluation tools were matched with ICF-CY code. Frequency, breadth and density were main indicators for matched results report. Matched codes for cerebral palsy were mainly activities and participation. Conclusion：Matching health and health-related information about children and adolescents with ICF-CY is an important means to promote the clinical implementation of ICF-CY. Cerebral palsy has received the most attention within included articles focusing on population, which provides valuable evidence for the elaboration of ICF-CY elements in CANDLEP development.

Key words: Children, Adolescents, Cerebral palsy, ICF-CY, Relate, Scoping review

尹欢欢王慧珊沈修姝许磊许业涛翟淳朱默林伟泽李惠史惟. 健康和健康相关信息与《国际功能、残疾和健康分类（儿童青少年版)》链接文献状况的范围综述[J]. 中国循证儿科杂志, 2023, 18(3): 221-225.

YIN Huanhuan, WANG Huishan, SHEN Xiushu, XU Lei, XU Yetao, ZHAI Chun, ZHU Mo, LIN Weize, LI Hui, SHI Wei. Literature on matching health and healthrelated information with international classification of functioning, disability and health for children and youth : A scoping review[J]. Chinese Journal of Evidence-Based Pediatrics, 2023, 18(3): 221-225.

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